Resources & Tools
Links to Online Resources
- 3 Steps Toward Preventing Infections During Cancer Treatment (3 Steps) is an evidence-based, interactive online program designed to help assess a cancer patient’s risk for developing both a low white blood cell count during chemotherapy and subsequent infections.
- A Guide to Making Decisions About Your Cancer Therapy
This booklet addresses some of the feelings associated with the diagnosis of cancer.You might be surprised to learn that you are not alone in your feelings and that many people have the same responses. This booklet discusses a variety of ways to get the information you need to become an informed, active participant in your cancer treatment.
- A Resource Guide for Students Living with Health Issues
This resource provides information on how to balance studies with disease management, and lists scholarships specifically for students dealing with illness.
- Action on Smoking and Health
Action on Smoking and Health (ASH) is a national nonprofit legal action and educational organization fighting for the rights of nonsmokers against the many problems of smoking.
- American Pain Foundation
The American Pain Foundation is a nonprofit information resource and patient advocacy organization serving people with pain. Their mission is to improve the quality of life of people with pain by providing practical information for patients, raising public awareness and understanding of pain, and advocating against barriers to effective treatment.
- Americans for Better Care of the Dying
Every dying person needs to be able to count on excellent care at the end of life. ABCD aims to improve end-of-life care by learning which social and political changes will lead to enduring, efficient, and effective programs. We work with the public, clinicians, policymakers, and other end-of-life organizations to make change happen.
- Association of Community Cancer Centers
Helps oncology professionals adapt to the complex challenges of program management, cuts in reimbursement, hospital consolidation and mergers, and legislation and regulations that threaten to compromise the delivery of quality cancer care.
- Behind the Cancer Headlines
Behind the Cancer Headlines” is a collaboration between the Mid-Atlantic Breast Cancer Information Exchange (MABCIE) and a consortium of the best medical writers and editors in the United States. Each day we go “behind the cancer headlines” to provide you with educational, reader-friendly articles that fully explain the most recent advances in cancer research and cutting-edge trends in diagnosis and treatment.
- Cancer Care
Cancer Care is dedicated to providing emotional support, information, and practical help to people with cancer and their loved ones. Cancer Care provides a toll-free Counseling Line and teleconference programs through its office-based services, and via the Internet. All services are provided free of charge and are available to people of all ages, with all types of cancer, at any stage of the disease. Cancer Care’s reach, including its cancer awareness initiatives, also extends to family members, caregivers, and professionals, providing vital information and assistance.
An online resource for cancer patients, their families, and caregivers that delivers information to help people with cancer make informed treatment decisions for an optimal outcome.
- The Cancer Insurance Checklist
This resource (available in English and Spanish) is designed to help consumers who are living with cancer (or are at risk for cancer) when shopping for insurance on state Health Insurance Marketplaces/Exchanges. Users can compare insurance plans, compare costs and choose the plan that is best for them.
- Centers for Disease Control and Prevention
Promotes health and quality of life by preventing and controlling disease, injury, and disability.
Provides regularly updated information about federally and privately supported clinical research in human volunteers. ClinicalTrials.gov gives you information about a trial’s purpose, who may participate, locations, and phone numbers for more details.
- Coalition of Cancer Cooperative Groups
This coalition works to ensure the continued opportunity for patients to participate in clinical trials.
Bringing Government Closer to the People. FirstGov connects Americans to all 27 million federal agency web pages, providing citizens with a single point of entry to one of the largest and most useful collections of web pages in the world. FirstGov began as a challenge by President Clinton in June, 2000. 90 days later, the President announced the opening of FirstGov.
- Food and Drug Administration
FDA is a public health agency, charged with protecting American consumers by enforcing the Federal Food, Drug, and Cosmetic Act and several related public health laws
Healthcare 411 is an audio podcast series produced by the Agency for Healthcare Research and Quality (AHRQ), part of the U.S. Department of Health and Human Services.
- How You Can Help Medical Research: Donating Your Blood, Tissue, and Other Samples
Sample donation is critical to medical research, yet many people have no idea what it is or what it involves. The National Cancer Institute’s Biorepositories and Biospecimen Research Branch (BBRB) has produced a booklet for patients that explains what human samples are, the sample donation process and how samples can help researchers look for ways to prevent, find and treat health problems.
- National Cancer Institute
NCI is one of 27 Institutes and Centers that comprise the U.S. National Institutes of Health, which is part of the U.S. Department of Health and Human Services. It was established by Congress in the National Cancer Institute Act of 1937. It’s responsibilities include conducting and fostering cancer research; reviewing and approving grant-in-aid applications to support promising research projects on the causes, diagnosis, treatment, and prevention of cancer; collecting, analyzing, and disseminating the results of cancer research conducted in the United States and in other countries; and providing training and instruction in cancer diagnosis and treatment.
- National Coalition for Cancer Survivorship
A nationwide network of independent organizations and individuals working in the area of cancer support and information on behalf all people with all types of cancer.
- National Hospice and Palliative Care Organization
NHPCO provides educational programs and technical assistance, and works to influence health programs and public policies related to end of life care.
- National Library of Medicine
The NLM is a part of the National Institutes of Health, US Department of Health and Human Services. Since its founding in 1836, NLM has played a pivotal role in translating biomedical research into practice. It is the world’s largest biomedical library and the developer of electronic information services that deliver trillions of bytes of data to millions of users every day. Scientists, health professionals, and the public in the US and around the globe search the Library’s online information resources more than one billion times each year.
- NewYork-Presbyterian Hospital’s Cancer Prevention newsletter
Cancer Prevention is a national and international newsletter and website produced under the auspices of the Cancer Prevention Program at NewYork-Presbyterian Hospital. The first of its kind in the United States and abroad, this educational publication is written by leading physician-scientists and public health experts and presents the latest advances in cancer prevention for physicians and the public at large.
- Putting Patients First
The National Health Council (NHC) is pleased to announce the launch of two much anticipated tools on PuttingPatientsFirst.net, our new website that provides resources to help people make informed decisions about purchasing health insurance on the marketplace.
The Estimate My Costs tool helps people project how their annual anticipated medical services and drug usage will impact their health care costs across the metal plans offered in their state.
The second tool – Explore My Options – allows people to review a set of six different health scenarios to see how different health conditions, medical and drug use, and metal plans impact out-of-pocket costs.
- Resource Guide for College Students Living With Chronic Health Issues
Managing a chronic illness is challenging under the best of circumstances, but add the stress of college and things can quickly spin out of control. This guide focuses on how to balance studies with disease management and lists a number of scholarships specifically for students dealing with illness – an important feature considering the financial aid pitfalls these students sometimes encounter.
- Yahoo! Cancer Research News
Contains cancer research-related news.
- How to Help Someone With Cancer: 70 Ways To Help Cancer Patients and Their Families During Cancer Treatment
Free e-book for Amazon Kindle Unlimited subscribers; a paperback edition is also available.