Coalition Letters: 114th Congress

May 2015
Research!America

Letter in support of the five-year $10 billion NIH Innovation Fund included in the second draft of the 21st Century Cures legislation. 

May 2015
National Patient Advocate Foundation

Letter to Congressman John Carney and Congressman Andy Barr thanking them for the introduction of the Medical Debt Relief Act of 2015. 

May 5, 2015
ACS CAN

Letter endorsing Removing Barriers to Colorectal Cancer Screening Act (H.R. 1070 and S. 2348).

April 28, 2015
Letter to President Obama regarding the FDA timeline to finalize the regulation to extend FDA authority over all unregulated tobacco products. Specifically, the letter communicated that the regulation needs to be quickly finalized. 

April 21, 2015
Patient Access to Community Treatment Coalition

Letter to Congresswoman Cathy McMorris Rodgers expressing support for the Cancer Care Payment Reform Act of 2015. 

April 2015
National Coalition for Cancer Research

Letter to Congressman Fred Upton (Chair, House Committee on Energy and Commerce) and Congresswoman Diana DeGette regarding the 21st Century Cures initiative. Specifically, the letter focuses on increased resources for NIH and FDA, surrogate endpoint qualification and utilization, expanded access, clinical research modernization and centralized IRBs, and the NIH research strategic investment plan.

April 13, 2015
American Heart Association

Letter to Members of Congress regarding support for the Fitness Integrated with Teaching Kids (FIT Kids) Act which would help children obtain a head start on healthy life by providing regular, quality physical education. The letter also encourages restoration of proper funding levels to the physical education program.

April 3, 2015
Letter to House and Senate appropriators regarding FY2016 appropriations legislation. Specifically, NCCR requested at least $32 billion for the National Institutes of Health (NIH) and a proportional percentage increase for the National Cancer Institute (NCI).  

March 20, 2015
Letter to Members of Congress supporting the Genetic Information Nondiscrimination Act (GINA) and the Americans with Disabilities Act (ADA). The letter also opposes provisions within the Preserving Employee Wellness Programs Act (S.620/H.R.1189) that would allow employers to inquire about employees’ private genetic information or medical information unrelated to their ability to do their jobs, and penlize employees who choose to keep that information private. 

March 27, 2015
Cancer Leadership Council 
Letter to Congressman Fred Upton (Chairman, House Committee on Energy and Commerce) and Congresswoman Diana Degette regarding the January 2015 discussion draft “21st Century Cures Act.” 

March 25, 2015
One Voice Against Cancer
Letter to Congressman Hal Rogers (Chairman, House Committee on Appropriations), Congresswoman Nita Lowey (Ranking Member, House Committee on Appropriations), Senator Thad Cochran (Senate Committee on Appropriations), and Senator Barbara Mikulski (Ranking Member, Senate Committee on Appropriations) regarding the FY 2016 Labor-HHS-Education appropriations bill. Specifically, the letter focuses on increased funding of $33 bilion for that National Institutes of Health including $5.4 billion for the National Cancer Institute.

March 24, 2015
One Voice Against Cancer
 Letter to Congressman Fred Upton (Chairman, House Committee on Energy and Commerce) and Congresswoman Diana Degette regarding the January 2015 discussion draft “21st Century Cures Act.” 

March 25, 2015
One Voice Against Cancer
Letter to Congressman Hal Rogers (Chairman, House Committee on Appropriations), Congresswoman Nita Lowey (Ranking Member, House Committee on Appropriations), Senator Thad Cochran (Senate Committee on Appropriations), and Senator Barbara Mikulski (Ranking Member, Senate Committee on Appropriations) regarding the President’s FY 2016 budget. Specifically, the letter focuses on the proposed cutes to cancer prevention and early detection programs within the Centers for Disease Control and Prevention. 

March 14, 2015
One Voice Against Cancer
Letter to Senator Dick Durbin expressing gratitude for his introduction of the American Cures Act (S. 289).

March 12, 2015
Cancer Innovation CoalitionLetter to Congressman Fred Upton (Chairman, House Committee on Energy and Commerce) and Congresswoman Diana Degette regarding the January 2015 discussion draft “21st Century Cures Act.”

March 2015
Healthcare Leadership Council
Letter to Congress urging a repeal of the Independent Payment Advisory Board (IPAB) in order to protect Medicare beneficiaries’ access to quality healthcare.

March 4, 2015
National Osteoporosis Foundation

Letter to Congress encouraging support of the Medicare Part D non-interference provision.  The letter was written in response to recent proposals to change Medicare Part D.

March 4, 2015
National Health Council
Letter to the House Committee on Energy and Commerce expressing gratitude for inclusion of the Dormant Therapies Act in the 21st Century Cures discussion draft bill.

February 25, 2015
Letter to Congress opposing H.R. 662, legislation that woudl make exempt many cigars from regulation under the Family Smoking Prevention and Tobacco Control Act. The letter support the FDA retaining oversight authority over all tobacco products, including all cigars. 

February 6, 2015
Urology Policy Forum
Letter to Congress regarding support for Con. Res., The Supporting Quality of Life for Prostate Cancer Patients which addresses the importance of reconstructive urological surgical treatments that utilize medical devices. 

February 3, 2015
One Voice Against Cancer

Letter to Congresswoman Rosa DeLauro, Congressman Brian Higgins, Senator Barbara Mikulski, and Senator Benjamin Cardin regarding the Advancing Biomedical Research Act. Specifically, the letter expressed OVAC’s support for the legislation and thanked the Members for their efforts to restore investment in the National Institutes of Health (NIH). 

February 3, 2015
Letter to Congressman Fred Upton regarding the 21st Century Cures legislation. Specifically, the letter encourages the committee to include the Patients’ Access to Treatment Act (PATA) language in the bill. 

February 2, 2015
Cancer Leadership Council
Letter to Margaret Hamburg (Commissioner, U.S. Food and Drug Administration) regarding FDA-2011-D-0360, Framework for Regulatory Oversight of Laboratory Developed Tests. Specifically, the letter supports the risk-based approach to the regulation of LDTs.

January 29, 2015
Letter to Francis Collins (Director, National Institutes of Health) regarding the Draft NIH Policy on the Use of a Single Institutional Review Board for Multi-Site Research. Specifically, the letter supports a single IRB in an effort to reduce duplication and inefficiency. 

January 29, 2015
Letter to Sylvia Burwell (Secretary, U.S. Department of Health and Human Services) regarding the new product provisions of the Family Smoking Prevention and Tobacco Control Act to products the U.S. Food and Drug Administration proposes to deem subject to its authority. Specifically, the letter focuses on the premarket review process for new tobacco products and the importance maintaining the orignal grandfathering date of February 15, 2007. 

January 28, 2015
SHAPE America
Letter to Senator Lamar Alexander and Senator Patty Murray regarding the Elementary and Secondary Education Act (ESEA). Specifically, the letter addresses Title IV and support the inclusion of physical education and health education as key components of the draft legislation. 

January 2015
NDD United

Letter to Congress calling for an end to sequestration that is balanced, recognizes the impacts that austerity has already had on Americans, and that ensures that any relief from sequestration is the same, dollar-for-dollar, on both the defense and non-defense portions of the budget.

January 16, 2015 
American Society for Gastrointestinal Endoscopy

Letter to Congressman Fred Upton (Chairman, House Energy and Commerce Committee), Congressman Frank Pallone (Ranking Member, House Energy and Commerce Committee), Congressman Joe Pitts (Chairman Subcommittee on Health, Energy and Commerce Committee), Congressman Gene Green (Ranking Member, Subcommittee on Health, Energy and Commerce Committee), and Congresswoman Diana Degette (Member, House Energy and Commerce Committee) regarding the 21st Century Cures legislation and the potential inclusion of langugage to waive Medicare beneficiary coinsurance for a screening colonoscopy that involves removal of a polyp during the screening encounter.

January 12, 2015
Cancer Leadership Council 
Letter to the National Association of Insurance Commissioners Regulatory Framework (B) Task Force regarding the Health Benefit Plan Network Access and Adequacy Model Act.