Coalition Letters: 114th Congress

 

February 29, 2016
Letter to Senator Jeff Merkley thanking him for introducing the Medical Debt Relief Act, S. 2592.  This bill would clear settled medical debt from credit reports and institute a 180-day reporting requirement for medical debt to credit agencies.

February 26, 2016
Tobacco Free Kids
Letter to Mitchell Zeller (Director, Center for Tobacco Products, U.S. Food and Drug Administration) urging the FDA to review and regulate new tobacco products, particularly those seemingly marketed to a younger audience, as required by the Family Smoking Prevention and Tobacco Control Act of 2009.

January 29, 2016
Cancer Leadership Council
Letter to Senator Orrin Hatch (Chairman, U.S. Senate Finance Committee), Senator Ron Wyden (Ranking Member, U.S. Senate Finance Committee), Senator Johnny Isakson (Co-Chair, U.S. Senate Chronic Care Working Group), and Senator Mark Warner (Co-Chair, U.S. Senate Chronic Care Working Group) thanking them for consideration of care and payment for chronic conditions, for addressing cancer as a chronic condition, and comments on the Working Group’s policy proposals.

January 29, 2016
Cancer Leadership Council
Letter to Senator Orrin Hatch (Chairman, U.S. Senate Finance Committee), Senator Ron Wyden (Ranking Member, U.S. Senate Finance Committee), Senator Johnny Isakson (Co-Chair, U.S. Senate Chronic Care Working Group), and Senator Mark Warner (Co-Chair, U.S. Senate Chronic Care Working Group) thanking them for consideration of care and payment for chronic conditions, for addressing cancer as a chronic condition, and comments on the Working Group’s policy proposals.

January 29, 2016
Cancer Leadership Council
Letter to Senator Orrin Hatch (Chairman, U.S. Senate Finance Committee), Senator Ron Wyden (Ranking Member, U.S. Senate Finance Committee), Senator Johnny Isakson (Co-Chair, U.S. Senate Chronic Care Working Group), and Senator Mark Warner (Co-Chair, U.S. Senate Chronic Care Working Group) thanking them for consideration of care and payment for chronic conditions, for addressing cancer as a chronic condition, and comments on the Working Group’s policy proposals.

January 29, 2016
Cancer Leadership Council
Letter to Senator Orrin Hatch (Chairman, U.S. Senate Finance Committee), Senator Ron Wyden (Ranking Member, U.S. Senate Finance Committee), Senator Johnny Isakson (Co-Chair, U.S. Senate Chronic Care Working Group), and Senator Mark Warner (Co-Chair, U.S. Senate Chronic Care Working Group) thanking them for consideration of care and payment for chronic conditions, for addressing cancer as a chronic condition, and comments on the Working Group’s policy proposals.

December 4, 2015
Letter to Senator Mitch McConnell (U.S. Senate Majority Leader), Senator Harry Reid (U.S. Senate Minority Leader), Representative Paul Ryan (Speaker of the U.S. House of Representatives) and Representative Nancy Pelosi (U.S. House of Representatives Minority Leader) urging them to include the Protect Access to Lifesaving Screenings (PALS) Act in the budget omnibus legislation.  The PALS Act would but a moratorium on the U.S. Preventive Services Task Force’s recommendations on mammograms, maintaining access with no cost-sharing to annual mammograms above the age of 40.

November 17, 2015
Society of Health and Physical Educators
Letter to Senator Lamar Alexander (Chairman, U.S. Senate HELP Committee), Senator Patty Murray (Ranking Member, U.S. Senate HELP Committee), Representative John Kline (Chairman, U.S. House of Representatives Education and Workforce Committee) and Representative Bobby Scott (Ranking Member, U.S. House of Representatives Education and Workforce Committee) supporting the inclusion of the Physical Education Program (PEP) in the Every Child Achieves Act.

November 17, 2015
Cancer Leadership Council
Letter to Andy Slavitt (Acting Administrator, Centers for Medicare & Medicaid Services) regarding the Merit-Based Incentive Payment System and Alternative Payment Models.  The letter urges CMS to consider, rather than over-utilization of services, targeted, proper utilization of services, and for any Alternative Payment Models to include consideration of payment for planning and coordination of care between doctors and patients.

November 9, 2015
I Am Essential
Letter to Sylvia Burwell, Secretary of Health and Human Services, regarding the Affordable Care Act’s Non-Discrimination Proposed Rule.  The letter urges HHS to more strictly define what constitutes non-discrimination in ACA plans, and to enforce the non-discrimination provisions of the Act.

November 6, 2015
Lung Cancer Alliance
Letter to Sylvia Burwell, Secretary of Health and Human Services, regarding the U.S. Preventive Services Task Force’s recommendation for low dose CT screening for lung cancer.  The letter supports the “B” rating, and the decision by the Centers for Medicare and Medicaid Services to require coverage of low dose CT screening, but urges all relevant departments to educate the public about their access to screening.

October 29, 2015
Friends of Cancer Research
Letter to Senator Lamar Alexander (Chairman, U.S. Senate HELP Committee) and Senator Patty Murray (Ranking Member, U.S. Senate HELP Committee) supporting the nomination of Dr. Robert Califf as the Commissioner of the Food and Drug Administration. 

June 18, 2015
Letter to Congressman Fred Upton, Congresswoman Diana DeGette, and Congressman Frank Pallone regarding 21st Century Cures.  The letter is a thank you for including certain provisions in the legislation, particularly the NIH Innovation Fund, which will provide the NIH with $10 billion of mandatory funding over five years and will help to ensure that the current momentum in research is not hindered by potential budget limitations.

June 18, 2015
Letter to Congressman Michael Burgess and Congresswoman Diana DeGette expressing support for the Preventive Health savings Act.  This bill will expand the “scoring” window from 10 to 30 years in order to demonstrate the value of prevention and wellness-focused policies.

June 15, 2015
Patient Access to Community Treatment Coalition
Letter to Congresswoman Renee Ellmers and Congressman Steve Israel regarding support for H.R. 1416, the Cancer Patient Protection Act of 2015.  The letter thanks the members specifically commenting on the importance of the legislation as an important step in ensuring patients, especially Medicare beneficiaries, have access to community-based medical care by temporarily removing the application of the Medicare sequester cuts on Part B drugs while gathering additional research to determine sequestration’s effect on patient access.

June 12, 2015
National Council of Skin Cancer Prevention
Letter to the president of lululemon athletica regarding their reusable shopping bags.  The bags say, “Sunscreen absorbed into the skin might be worse for you than sunshine.  Get the right amount of sunshine.”  The letter asks lululemon to replace this incorrect message with something more appropriate that promotes healthy behaviors.

May 2015
Research!America

Letter in support of the five-year $10 billion NIH Innovation Fund included in the second draft of the 21st Century Cures legislation. 

May 2015
National Patient Advocate Foundation

Letter to Congressman John Carney and Congressman Andy Barr thanking them for the introduction of the Medical Debt Relief Act of 2015. 

May 5, 2015
ACS CAN

Letter endorsing Removing Barriers to Colorectal Cancer Screening Act (H.R. 1070 and S. 2348).

April 28, 2015
Letter to President Obama regarding the FDA timeline to finalize the regulation to extend FDA authority over all unregulated tobacco products. Specifically, the letter communicated that the regulation needs to be quickly finalized. 

April 21, 2015
Patient Access to Community Treatment Coalition

Letter to Congresswoman Cathy McMorris Rodgers expressing support for the Cancer Care Payment Reform Act of 2015. 

April 2015
National Coalition for Cancer Research

Letter to Congressman Fred Upton (Chair, House Committee on Energy and Commerce) and Congresswoman Diana DeGette regarding the 21st Century Cures initiative. Specifically, the letter focuses on increased resources for NIH and FDA, surrogate endpoint qualification and utilization, expanded access, clinical research modernization and centralized IRBs, and the NIH research strategic investment plan.

April 13, 2015
American Heart Association

Letter to Members of Congress regarding support for the Fitness Integrated with Teaching Kids (FIT Kids) Act which would help children obtain a head start on healthy life by providing regular, quality physical education. The letter also encourages restoration of proper funding levels to the physical education program.

April 3, 2015
Letter to House and Senate appropriators regarding FY2016 appropriations legislation. Specifically, NCCR requested at least $32 billion for the National Institutes of Health (NIH) and a proportional percentage increase for the National Cancer Institute (NCI).  

March 20, 2015
Letter to Members of Congress supporting the Genetic Information Nondiscrimination Act (GINA) and the Americans with Disabilities Act (ADA). The letter also opposes provisions within the Preserving Employee Wellness Programs Act (S.620/H.R.1189) that would allow employers to inquire about employees’ private genetic information or medical information unrelated to their ability to do their jobs, and penlize employees who choose to keep that information private. 

March 27, 2015
Cancer Leadership Council 
Letter to Congressman Fred Upton (Chairman, House Committee on Energy and Commerce) and Congresswoman Diana Degette regarding the January 2015 discussion draft “21st Century Cures Act.” 

March 25, 2015
One Voice Against Cancer
Letter to Congressman Hal Rogers (Chairman, House Committee on Appropriations), Congresswoman Nita Lowey (Ranking Member, House Committee on Appropriations), Senator Thad Cochran (Senate Committee on Appropriations), and Senator Barbara Mikulski (Ranking Member, Senate Committee on Appropriations) regarding the FY 2016 Labor-HHS-Education appropriations bill. Specifically, the letter focuses on increased funding of $33 bilion for that National Institutes of Health including $5.4 billion for the National Cancer Institute.

March 24, 2015
One Voice Against Cancer
 Letter to Congressman Fred Upton (Chairman, House Committee on Energy and Commerce) and Congresswoman Diana Degette regarding the January 2015 discussion draft “21st Century Cures Act.” 

March 25, 2015
One Voice Against Cancer
Letter to Congressman Hal Rogers (Chairman, House Committee on Appropriations), Congresswoman Nita Lowey (Ranking Member, House Committee on Appropriations), Senator Thad Cochran (Senate Committee on Appropriations), and Senator Barbara Mikulski (Ranking Member, Senate Committee on Appropriations) regarding the President’s FY 2016 budget. Specifically, the letter focuses on the proposed cutes to cancer prevention and early detection programs within the Centers for Disease Control and Prevention. 

March 14, 2015
One Voice Against Cancer
Letter to Senator Dick Durbin expressing gratitude for his introduction of the American Cures Act (S. 289).

March 12, 2015
Cancer Innovation CoalitionLetter to Congressman Fred Upton (Chairman, House Committee on Energy and Commerce) and Congresswoman Diana Degette regarding the January 2015 discussion draft “21st Century Cures Act.”

March 2015
Healthcare Leadership Council
Letter to Congress urging a repeal of the Independent Payment Advisory Board (IPAB) in order to protect Medicare beneficiaries’ access to quality healthcare.

March 4, 2015
National Osteoporosis Foundation

Letter to Congress encouraging support of the Medicare Part D non-interference provision.  The letter was written in response to recent proposals to change Medicare Part D.

March 4, 2015
National Health Council
Letter to the House Committee on Energy and Commerce expressing gratitude for inclusion of the Dormant Therapies Act in the 21st Century Cures discussion draft bill.

February 25, 2015
Letter to Congress opposing H.R. 662, legislation that woudl make exempt many cigars from regulation under the Family Smoking Prevention and Tobacco Control Act. The letter support the FDA retaining oversight authority over all tobacco products, including all cigars. 

February 6, 2015
Urology Policy Forum
Letter to Congress regarding support for Con. Res., The Supporting Quality of Life for Prostate Cancer Patients which addresses the importance of reconstructive urological surgical treatments that utilize medical devices. 

February 3, 2015
One Voice Against Cancer

Letter to Congresswoman Rosa DeLauro, Congressman Brian Higgins, Senator Barbara Mikulski, and Senator Benjamin Cardin regarding the Advancing Biomedical Research Act. Specifically, the letter expressed OVAC’s support for the legislation and thanked the Members for their efforts to restore investment in the National Institutes of Health (NIH). 

February 3, 2015
Letter to Congressman Fred Upton regarding the 21st Century Cures legislation. Specifically, the letter encourages the committee to include the Patients’ Access to Treatment Act (PATA) language in the bill. 

February 2, 2015
Cancer Leadership Council
Letter to Margaret Hamburg (Commissioner, U.S. Food and Drug Administration) regarding FDA-2011-D-0360, Framework for Regulatory Oversight of Laboratory Developed Tests. Specifically, the letter supports the risk-based approach to the regulation of LDTs.

January 29, 2015
Letter to Francis Collins (Director, National Institutes of Health) regarding the Draft NIH Policy on the Use of a Single Institutional Review Board for Multi-Site Research. Specifically, the letter supports a single IRB in an effort to reduce duplication and inefficiency. 

January 29, 2015
Letter to Sylvia Burwell (Secretary, U.S. Department of Health and Human Services) regarding the new product provisions of the Family Smoking Prevention and Tobacco Control Act to products the U.S. Food and Drug Administration proposes to deem subject to its authority. Specifically, the letter focuses on the premarket review process for new tobacco products and the importance maintaining the orignal grandfathering date of February 15, 2007. 

January 28, 2015
SHAPE America
Letter to Senator Lamar Alexander and Senator Patty Murray regarding the Elementary and Secondary Education Act (ESEA). Specifically, the letter addresses Title IV and support the inclusion of physical education and health education as key components of the draft legislation. 

January 2015
NDD United

Letter to Congress calling for an end to sequestration that is balanced, recognizes the impacts that austerity has already had on Americans, and that ensures that any relief from sequestration is the same, dollar-for-dollar, on both the defense and non-defense portions of the budget.

January 16, 2015 
American Society for Gastrointestinal Endoscopy

Letter to Congressman Fred Upton (Chairman, House Energy and Commerce Committee), Congressman Frank Pallone (Ranking Member, House Energy and Commerce Committee), Congressman Joe Pitts (Chairman Subcommittee on Health, Energy and Commerce Committee), Congressman Gene Green (Ranking Member, Subcommittee on Health, Energy and Commerce Committee), and Congresswoman Diana Degette (Member, House Energy and Commerce Committee) regarding the 21st Century Cures legislation and the potential inclusion of langugage to waive Medicare beneficiary coinsurance for a screening colonoscopy that involves removal of a polyp during the screening encounter.

January 12, 2015
Cancer Leadership Council 
Letter to the National Association of Insurance Commissioners Regulatory Framework (B) Task Force regarding the Health Benefit Plan Network Access and Adequacy Model Act.